Tracing Care is a patient-first platform that gives people real control over their health data — who sees it, when, and why. This is what healthcare should look like.
The current system treats patients as passive recipients of care — not active participants. Data flows freely between providers, insurers, and researchers without meaningful patient awareness or control.
Patients have no way to see who accessed their records, when, or why. Data moves invisibly through a fragmented system.
Health records are routinely shared between providers, insurers, and researchers — often without explicit patient understanding or agreement.
Families managing care for loved ones navigate a maze of siloed systems, rigid proxy access, and provider-controlled permissions.
Tracing Care reimagines the patient experience from the ground up. Every feature is designed around one principle: patients deserve to be active participants in their healthcare.
One place to see your providers, medications with full clinical detail, insurance, and alerts — with a Data Trust Score that shows your privacy posture at a glance.
The first patient-facing feature of its kind — a live, readable feed showing exactly who accessed your data, what they viewed, and when. No more invisible data flows.
Toggle exactly what each provider, insurer, or researcher can see. Revoke access instantly. Delete your data entirely. You are always in control.
Manage care for loved ones with role-based permissions built around real relationships — not just clinical roles. Built for families, not just providers.
Every screen prioritizes clarity, trust, and accessibility — meeting WCAG standards so no one is left behind.
Every feature in Tracing Care exists because patients deserve it — not because a regulation requires it. Here's how we compare to the status quo.
The healthcare system was built for institutions — not for the people it serves. Tracing Care is built on the belief that when patients have real visibility, real control, and real trust, outcomes improve for everyone.
This isn't just a product philosophy. It's a moral position. Health data transparency should be the standard — not a premium feature, not a regulatory checkbox, not a future consideration.
Giving patients a portal to view their records is not the same as giving them ownership. True ownership means control, transparency, and the right to revoke.
Every data access event should be visible to the patient. Not on request, not after a delay — in real time, in plain language, always.
Patients should choose to share their data with researchers, not be opted in by default. Informed consent is not a legal formality — it's a design requirement.
The people who help us navigate illness — partners, parents, friends, nurses — deserve tools built for human relationships, not clinical hierarchies.
A health platform that isn't accessible to people with disabilities, low literacy, or limited tech fluency has already failed its most vulnerable users.
Everything in Tracing Care should be unremarkable — because patients having control of their health data should be completely, utterly normal.
Tracing Care is an active, ongoing project. Here's an honest look at what's been built, what's in progress, and what's next.
Full patient portal prototype with 5 screens, brand system, accessibility compliance, and clinician portal view.
Visual identity, logo system, color palette, differentiation strategy, and competitive positioning documented.
Patient and clinician testers evaluating the prototype. Feedback collection live via branded feedback system.
Trademark filing, Delaware C-Corp formation, and startup attorney engagement underway.
Vanta implementation, BAA execution with AWS and Google Workspace, Security Risk Assessment.
Moving from prototype to production-grade app with FHIR R4 API, real auth, and HIPAA-eligible hosting.
Developer program application and integration build to reach Epic's 305M+ patient network.
Targeting 3–5 paying health systems or clinics to validate product-market fit before pre-seed raise.
All statistics and claims on this page are supported by peer-reviewed research, government data, or credible institutional sources. Citations are provided for full transparency.
Peer-reviewed analysis of HHS OCR data finding healthcare breaches more than doubled in a decade — from 216 incidents affecting 6M records in 2010, to 566 incidents affecting 170 million records in 2024. Non-ransomware hacking now accounts for 81% of breaches.
Survey of 1,000 patients finding 92% believe health data privacy is a right, 94% want companies legally accountable for data use, 93% want app developers to be transparent, and 80% want the ability to opt-out of data sharing.
Meta-analysis of studies published since 2020 finding patients worldwide are broadly willing to share data — but only when transparency, consent, and individual control are guaranteed. Without these, trust collapses entirely.
The landmark peer-reviewed estimate of U.S. healthcare waste across six domains. Failure of care coordination — the specific problem Tracing Care addresses — costs $27.2B–$78.2B annually. Remains the authoritative citation as of 2026.
Drawing on 90+ policy and scholarly documents, this 2025 review affirms that patients share data when trust is established — and that transparency and ethical safeguards are the decisive factors in building that trust.
U.S. survey of health data professionals finding 97.3% believe individuals should have complete control over their health data, and 92% say specific consent should be obtained for each use.
Systematic review of 135+ studies confirming that transparency, individual control, and clear explanation of purpose are essential prerequisites for patients to support health data sharing for research.
Documents rapid growth in portal access (50%+ by 2022) with extensive detail on what patients can view — and no mention of real-time access audit logs available to patients in any major EHR platform.
Clinical study finding 43% of patients restricted at least one provider's access when actually given the option — demonstrating strong latent demand for the granular permissions Tracing Care provides.
The federal law requiring EHRs to provide patients access to their data and prohibiting information blocking. The legislative foundation of Tracing Care's market opportunity — the law exists but the patient experience of exercising these rights remains broken.